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For The Love of Khaos
Spreading Cystic Fibrosis Awareness Product at a Time.
Granite Shoals, Texas
About
We have been so very lucky for Meeshas health being as good as it is. When we do Great Strides each year, we do it for more than Meesha. We haven't had a hospital stay yet, our treatments are only about 40 minutes a day, and she is only taking enzymes. This is very minimal compared to the average CF patients requirements. This fight is bigger than our battle with this terminal disease. We walk for the CF patients that are in the hospital many times throughout each year, for months at a time some stays. We walk for the CF patients that spend 2 hours + each day doing treatments. With up to 4+ nebulized medications. We walk for the CF patients that learn to swallow pills before two, and take 20+ daily, plus the liquid meds. We walk for the CF patients that are currently waiting in for new Lungs just so they can breathe easy again. We walk for the CF patients that have had their lung or organ transplants and are doing everything they can to not have rejection and other complications that can happen. We walk for the CF patients that have to be on oxygen, and have trouble breathing after walking from the car to the house. We walk for the CF patients that get judged for looking perfectly healthy event though their body is fighting a battle on the inside. We walk for the CF families & friends that have lost their CF Friend / Sibling / Child / Parent far too soon! We walk for the babies that have already had major surgeries due to CF related issues. We walk for every CF patient that has to spend 4+ hours in a day at Clinic appointments. We walk for every CF patient that struggles to maintain / gain weight, many having to get gtubes. We walk because the CF Community needs every person to help spread awareness. Many don't even know they are a carrier until they have a child that test positive. A cure will come with research and medical advancements.
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Designer
Sabetha Danes